Parent Organization: Child Health Specialty Clinics
Location Information
904 East Taylor Street, Creston, IA, USA
Phone 6417829500 | Fax 6417829519
Child Health Specialty Clinics (CHSC) provides evaluation and treatment for children and youth with known or suspected chronic health problems. Professionals in cardiology, orthopedics, pediatrics, physical therapy, psychology, and other selected disciplines are an integral part of services. CHSC works closely with the Iowa Department of Public Health and other state and local organizations to help families find and coordinate other local services that their children may need.
Services:
- Nursing
- Medical
- Nutrition
- Care Coordination
- Assistance in obtaining Home Care, waiver services, and available financial resources
- Family-to-family Support
- Assistance in locating child care for special needs children
- Evaluation and assessment
- Direct clinical services
- Autism consultation
- Advocacy on behalf of children with special health care needs
Eligibility:
CHSC serves any Iowa child or youth from birth through age 21 with or at risk of a chronic health condition or disability which includes psychosocial, physical, health-related, educational, and behavioral needs. The specific health concerns may be simple or complex, short-term, or long-term.
Hours:
Monday – Thursday 8:00 am – 4:30 pm
Payment:
Private Insurance, Hawki, Medicaid
Handicap Accessible: Yes
Appointment Needed: Yes
Website: View Website
Health and Disease Management (HDM) provides the family centered care coordination services of the Child Health Specialty clinics (CHSC), Iowa's Title V program for children with special health care needs. Nurses and Family Navigators help locate and organize resources enabling these children to grow up with other family members and participate in normal community activities. The HDM team helps families access health, education, and social support services and provides care coordination to help children with special health needs remain at home and in their communities.
Services:
- Preliminary Planning and Health Care Monitoring
- Long-Term Health Coordination
- Technical Assistance and Consultation
- Care Coordination Systems Development
- Health and Disease Management
Eligibility:
HDM services are available to Iowa children and youth, from birth through age 21, who have special health care needs, eligible for Early and Periodic Screening Diagnosis and Treatment (EPSDT), or on the Health and Disability Waiver.
Intake Process:
Call the intake number at 319.356.1035. Program participants will need to provide name, date of birth, address, phone number, and county of residence.
Handicap Accessible: Yes
Appointment Needed: Yes
Program: Early ACCESS
Early ACCESS is an early intervention system of services provided to families. Services provide support and resources to help assist families enhance children’s development through everyday learning environments. Common areas are talking, moving, seeing, listening, thinking, eating, or playing. Every child is eligible for an evaluation. The evaluation will determine eligibility for further services.
Services:
- Assistive Technology
- Audiology
- Physical Therapy
- Psychology
- Family Training/Counseling
- Health Services
- Nutrition
- Occupational Therapy
- Special Instruction
- Speech Language Therapy
- Vision
- Transportation
Intake Process:
Call the Iowa Family Support Network at 1.888.425.4371, your local Area Education Agency, or local Child Health Specialty Clinic.
Payment:
No Cost to Participant
Handicap Accessible: Yes
Appointment Needed: Yes
Iowa's Early Hearing Detection and Intervention Program works to ensures that all newborns and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, medical interventions and family support. The EHDI program is also dedicated to providing unbiased support to families of children who are deaf or hard of hearing. Given the serious ramifications of late identification of hearing loss, it is important to perform newborn hearing screening and as soon as possible make diagnostic referrals for infants who do not pass the screening. Because of this, Iowa legislature passed a law (Iowa Code section 135.1310) which requires universal hearing screening of all newborns and infants in Iowa. The law further provides that any birthing hospital, birth center, physician, any facility including Area Education Agencies(AEAs), audiologists, and other health care professional are legally required to report to the Iowa Department of Public Health (IDPH) the results of a hearing screen, re-screen, or diagnostic assessment for any child under three years of age.
Services:
- Hearing screen
- Referral for additional testing
- Educational materials
Eligibility:
The hearing screening program is voluntary for all newborn infants.
Intake Process:
Contact Early ACCESS Iowa 1.888.425.4371 to find a screening site. Area Education Agency audiologists provide hearing screenings for infants and children.
Handicap Accessible: Yes
Appointment Needed: Yes
The Iowa High-Risk Infant Follow-up Program is a service program to provide in-depth developmental assessments for children who received care in a neonatal care unit during the first 27 days of their lives.
Services:
- Developmental assessment
- Physical examination
- Neurological examination
- Growth and nutrition counseling
- Education
- Resource and referral
Eligibility:
Any family in Iowa whose baby, birth to 30 months of age, would have met any one of the following biological factors during the first 27 days of life is eligible. These factors are:
- Birth weight less than 1500 grams.
- Clinical diagnosis of Central Nervous System infection.
- Respiratory distress syndrome or other types of respiratory distress requiring medical ventilation for two hours or more.
- Asphyxia neonatorum as indicated by five minute Apgar of six or less.
- Hypoglycemia, as proven by two consecutive blood glucose levels of 40 mgm percent or less.
- Neonatal seizures, as documented by physician observation with concurrence of staff neonatologist in Iowa City, or attending pediatrician in Level II centers.
- Infants demonstrating hypotonia on discharge examination.
- Polycythemia: Central hematocrit of 65, or higher, or 60-64 with signs and partial exchange transfusion, with resolution of signs occurring within the first 24-hours of life.
- Maternal substance abuse during pregnancy.
Other examples include: sepsis; small for gestational age; hyperbilirubinemia (requiring exchange transfusion); interventricular hemorrhage, sibling meets criteria (from same birth); Intrauterine transfusion; those who will be entering environments which present severe psychosocial concerns; medical doctor request.
Handicap Accessible: Yes
Appointment Needed: Yes
The Iowa Regional Autism Assistance Program (RAP) provides community-based clinical consultation, multidisciplinary care planning recommendations, and family to family support for children with Autism Spectrum Disorder (ASD) and their families. RAP team members who work with families include advanced registered nurse practitioners, registered nurses and family navigators. They use standardized tools to identify children at risk for ASD and help families find diagnostic services.
RAP teams also help families access community-based services and supports to help meet their needs and goals.
RAP also provides technical assistance and training on evidence-based screening and assessment tools to medical home providers, Area Education Agencies, and other early intervention community providers.
Services:
- Screening for Autism Spectrum Disorder and other Developmental Disabilities
- Assistance navigating the education system
- Support with exploring insurance coverage and payment options for services
- Communicating with diagnostic facilities and healthcare providers
- Finding an advocacy or family support group
- Connecting to resources and information
- Listening to your concerns and sharing experiences
Eligibility:
Children, birth through age 21, who are suspected of or have a confirmed diagnosis of Autism Spectrum Disorders, and their families.
Intake Process:
Families can call RAP at 866-219-9119 Ext. 2 or email Iowa-RAP@uiowa.edu
Providers are encouraged to refer patients to RAP by completing a referral form available at: https://chsciowa.org/regional-autism-assistance-program.asp
Hours:
Monday – Thursday 8:00 am – 4:30 pm
Payment:
No Cost to Participant
Handicap Accessible: Yes
Appointment Needed: Yes
This program provides services to individuals with known or suspected neuromuscular disorders and muscular dystrophy. Examples of diagnosis seen in the clinics include Duchenne and Becker Muscular Dystrophy, Charcot-Marie-Tooth, FSH, and Myotonic dystrophy. Staff include professionals from the following disciplines: Board certified Pediatric Neurologist, Physical Therapies, Genetic Nurse Specialist, and others as needed.
Services:
- Management of neuromuscular health care concerns
- Patient and family education
- Supportive patient family services
- Physical Therapy
Eligibility:
Services are available to all persons, infant through adulthood, with a known or suspected neuromuscular disorder for evaluation.
Handicap Accessible: Yes
Appointment Needed: Yes
CHSC's Registered Dietitians provide families a nutrition assessment at a provider's request with follow-up care coordination as needed. CHSC also facilitates nutrition-focused system building activities including training and education on topics specific to children and youth with special health care needs.
CHSC has developed a series of handouts with nutrition and feeding guidelines for children and families. Handouts available on their website.
Services:
- Nutritional assessment
- Care planning
- Follow-up
The initial assessment and length of follow-up is based primarily on the clinical judgment of the dietitians and family needs. Services are provided by Registered Dietitians.
Eligibility:
Children birth through age 21. Referrals must be made by a medical provider to work with the Registered Dietitians. Anyone is available to access the handouts on the CHSC website.
Payment:
Private Insurance, Hawki, Medicaid
Handicap Accessible: Yes
Appointment Needed: Yes